Saturday, May 2, 2015

~The only thing Permanent is Change~

LOTS of change is on the way... 

~Needless to say~

We are MOVING!!






Yeee!!
The girls need warmer weather, 





and Casey would like to pursue Bible College. 





These things just can't be found in Faith, Sd- 

so away we go!



We have not a clue as to where yet. 







I joking say we have it "narrowed" down to:

Texas

Oklahoma

Alabama

or

Colorado





In a few weeks, we plan to take a
 "Family Vacation"/ "Find a landing place" journey.





We hope to be settled by August. 

Prayers of direction and travel mercies are appreciated... 



This journey in life sure is an exciting one!






Thanks for stickin' along side us for the ride! 


~One BLESSED mommie~ 





Thursday, April 30, 2015

-Catching Up-

Hello World! Its been a while since we last visited. As the old saying goes... "No news is good news". 

Life has been good and crazy around here. 

Crazy enough- that I have yet to give you an up-date on the 
El Salvador missions trip- so lets begin there... 

-El Salvador- 

We had an amazing experience with the entire family flying into San Salvador and being immersed into the El Salvadorian culture for almost 2 weeks. Our flights out were delayed by the wonderful South Dakota wintry weather- but once we made it to E Salvador- life was pretty perfect. We went to the church every week day we were there and they prayed over the entire family and loved on us every minute they could. 

Before we left- we asked for money and clothing donations. Our requests were answered in a HUGE way. We were able to purchase 915 gideon bibles, pack them up, haul them down, and distribute them among the El Salvadorian people in the Auchuapan area. We also took 3 suitcases full of used clothing down for the people to use and distribute among their families. (yes- we used every part of every bag we took with us! Thank goodness we took the family- which provided more "free" checked bags!! The weight limit per bag was 50 lbs, and every bag (6 of them) we checked was 50 or 50.5 lbs.... "little" miracles make me smile. :D )  

 I can't even begin to explain the thankfulness among the people for the bibles and the clothing they received. Many of them would take a little bible- look at it and hand it back- thinking it was really nice, but too nice for them to keep. Their faces shone like the sun when we would say "Para ti, Para ti" (for you, for you). It was an experience of a lifetime- and we are so grateful that many of you were a part of it. Thank you for your contributions and prayers along the way! 

Since we returned- the girls and the family have been doing well. Denalli had a check-up in January that showed she had gained strength between the doctor visits. Praise the Lord! Ryka continues to be as healthy as ever. 


~Life now~

In October I purchased an embroidery machine- to start a business that would be self-sustainable for the girls' medical equipment- and the Lord has blessed it. By God's grace- I was able to have a booth at the Black Hills Stock Show in Rapid City. 
Sales were fantastic- and I look forward to going back next year. I also met some amazing people that gave me good connections to more shows down the line. 

Through connections and lots of encouragement- I sent in an application for the Academy of Country Music Awards (50th anniversary) in Arlington, TX. At the last minute they had a cancelation and choose Prairie Faith Designs to come and be a part of their selective show. I invited a friend to go with me- (Dally Up Designs) and we drove down to Arlington, Tx- and had a trip of a lifetime! 

Currently- applications have been filed for more craft shows this summer and possibly a booth at the National Finals Rodeo in LasVegas. 
I'll keep ya posted. ;) 

So- as I said earlier- Prairie Faith Designs was created to help support the financial needs of the girls' medical equipment. (Basically- the girls need medical equipment. And will continue to need medical equipment. But, I don't have the heart to keep fund-raising and begging people for money. So therefore- I am putting my heart, soul and time into creating a business that will grow and be self sustainable for their needs. The only thing I ask of you, is to share my products with your friends. All the products I offer- look like leather, feel like leather, are competitively priced, are Hand made and are MACHINE WASHABLE! ) 



  Right now, Ryka is in need of a power-chair. 
She is needing the same K405 Permobil- like the one we 
fund-raised for Denalli.

 The price tag on this specialized chair is above $40,000.

We are a quarter of the way there. Once we save 1/2 the money needed- we will look into purchasing the chair and making payments. 

Thanks in advance for your sharing and advertising! :D 



~Up- Next~

We have a BIG summer ahead.

 Full of changes and growth. 

Announcement on the way. 

No- its not a baby announcement...


I'll catch ya soon~ 

One BLESSED mommie 









Saturday, December 27, 2014

Detour of Events

So I thought I would be writing about our trip to El Salvador, but instead I get to tell you about long nights, de-sats, and ways to make the hours move along.  

Denalli caught a bad virus that took a turn for the worse on Christmas Eve.  We had a long night of therapy sessions- but kept her going strong. On Christmas Day she did okay, had a couple of episodes, but made some good memories and had a good time. Christmas night was another long night full of de-sats, coughing, treatments and a little bit of sleep. The day after Christmas Denalli was a lot more tired than usual, had more coughing attacks and spent most of the day close to her machines. That night at 3am, (the 3rd night we had been fighting the sickness) Casey and I decided enough was enough and took her to the ER in RC. 

She received a loading dose of steroids that dramatically changed the way she was feeling. By that night she was doing well, and we had the option to go home or stay for observation. At one point we were going to go home- but instead changed our minds due to "mommie instincts" and opted to stay for observation. We are so thankful we did, because Denalli ended up sating low, and needed suplimental oxygen. 

That brings us up to speed to today. 


Today was a fairly good day. She had a good morning- colored pics, water colored more pics, watched movies, and took a nap. During her nap- her oxygen levels dropped below the comfort levels and medical intervention helped bump the numbers back up. 



Tonight she is resting peacefully. Her numbers are okay. No suplemental oxygen is needed yet. The attending doctor today has had a history with SMA kids from Iowa, and is in no hurry to send Denalli out the door. 



As with every hospital stay- we learn more and more about the complexity of this disease and how to be Denalli and rykas best advocate. We are so vey thankful for the wonderful hospital staff and all that they do to make us as comfortable as possible. We really have no idea when we will be able to go home. It all is a day by day and night by night sort of plan. 

We ask for prayers for healing and restoration for Denalli. She is such a fighter and even the Doctors are so impressed with how well she is handling  this virus and how well she has done in the past. 

Please also pray for the 4kids at home. This is so tough on them. Knowing Denalli is not feeling good and having both mommie and daddy away makes a long couple of days. 

We are ao very thankful for Casey's family that came to see us for the holiday and stayed extra days to watch and care for the 4 little ones at home. 

We are so thankful for a gracious God that is patient and kind and healing. 

Thanks for following along- 

~*~ OneBLESSEDmommie ~*~ 

Ps- to our "angel" family that sent Christmas cards to the family and is near by- please give a call! We would love to see you! 


Monday, October 6, 2014

~*~ Following God's Calling ~*~


God has called us and we are following His direction: 


We are going back to El Salvador to continue to seek Gods healing for our daughters and family  


Lets back up a bit and give you a little pre-text- 


  We went on our first BIG Missions Trip
about 9 months ago. 


Casey, Denalli, Ryka and I flew down to El Salvador for  2 1/2 weeks and went to a church where we were prayed over. 


We came home with medical proof that God was working in the girls and healing their bodies.


It was beyond AMAZING.... 


It was MIRACULOUS! 


Do you believe in miracles? 


Are you one that believes in miracles,
 but then puts a limit on God's blessing/healing?


When you pray, Do you say-

 "God, I believe you can bless me financially, but I doubt you can heal a sick child...."



Why would you pray and ask Him for something when you really don't believe he can provide it for you?!? 


Just something to think about... 



Anyhoo- Over the past 9 months we have seen miraculous healing in the girls' bodies.

Amazingness...  


So- We are so anxious to go back to seek His guidance and get a fresh perspective on His grace and goodness. 


Because- honestly- 

Even though the past 9 months have been absolutely full of blessings- 

they have probably been some of the toughest times as well. 



In El Salvador- we were surround by Gods people that lived and breathed His goodness. 




They absolutely did not doubt what God could do in any way, shape or form. 


Everyday in El Salvador- They simply Seek Him for who He is. 



So, imagine us coming back state side with the amazing news we had, only to be greeted with dismay and closed doors. 



Why am I telling you this?



Because- we have been called again to go to El Salvador and seek God and His promises. 




This time, we will be taking the entire family. 























We leave November 10th and will be home the 25th.





Yes- for 2 weeks and 1 day we will be submersed
 in the El Salvadorian culture.



We will be taking clothes and bibles down to the people in the church and the communities we will be visiting. 
If you have ANY clothes -
 adult/kid/baby, XLarge/ Small / Tiny- 

Basically- Any GOOD clothes that you would like to donate- 
please let me know and I will pick them up!

ALSO- we will be passing out bibles in the communities. 

 We would like to take down 300 bibles and need around $350 to purchase them. If you would like to donate to the bible fund- 
please send donations to:
Voss Bible Fund

 19879 165ST
 Faith- SD 57626)   


I want you to know this, Because I want you to be a part of it!


I want you to see the power of God and His hand working in our daughters. 


Friends- its too amazing for you to miss. 


It's too incredible for you not to see the process of His healing. 


We leave in about 1 month!! 



 Casey and I have the peace and assurance in our hearts that gives us to courage to take this next "leap of faith".  



Please be in prayer. 



There is so much to transpire between now and then.... 


We know God has brought us here in this Journey of life and we know He will carry us through.  


Be encouraged my friends. 




We serve a God that does not put limitations on us- 
so we need to stop putting limitations on Him.




Blessings~

~*~ One BLESSED mommie ~*~ 



PS- We plan on bringing back more El Salvadorian Cafe'. If you would like to purchase some- It would be a financial blessing for our family. Like before- the cafe' will be sun dried and fire roasted for a warm, smooth taste.  

Cafe' will be $13-15 a pound. 
Please let me know how much you would like! 

THANKS!! 

















Saturday, September 27, 2014

~*~ THE BIG ANNOUNCEMENT ~*~

The BIG ANNOUNCEMENT IS HERE!

I am so excited to share with you what was inside of the 


 FREIGHT TRUCK...



I asked for you to guess what it was
- and most everyone guessed it was a wheelchair... 

Although- it could have been a lion... 
That would have been awesome... until it got hungry! :-) 




No doubt- the wheel-chair guesses were on the right track...


Although- 
it is not exactly a Wheel Chair

But, it is a piece of equipment 
that will help provide Ryka with her Special Power Chair. 


The very special package came all the way from California!

It is a package that we have been praying for and searching out,
 over the past several months, 
and God carefully laid this one out before us.

Prayerfully, it will be the main source of income for Ryka's power chair and freedom... 

Do you really want to know what it is!?!?




AN EMBROIDERY MACHINE!





With this special machine-
I will be able to custom embroider and applique' about anything you can think of. 

Its pretty awesome!!


Understandably- this will not be an over-night solution to getting Ryka her independence. 

But- it is a self sustainable option 
that I can do here at home with my kids. 


Right now, my goal is to have the money saved in 2 years... 
(or less!)  


I have a bit of a learning curve ahead of me- 

But on the other side is hope for my daughters' freedom!!


With all this being said-

I am looking for potential customers 
to give me a chance at fulfilling their embroidery needs. 


I plan to have the machine up and running and ready to take on custom orders by October 15th. 
( or sooner!!) 


Sample work will be displayed shortly... 


In case you were wondering- 
Here are a few things that I will be 
able to customize and personalize for you:  


~*~ Coats, Jackets, 
Caps, Bath Towels, Kitchen Towels, Signs, Bags,  Blankets, Bibs, Shirts, Sweatshirts, Clothes, Jerseys, Uniforms ~*~


You name it and I will do my best to customize it!


Christmas is right around the corner...  
just think of all the personalized gifts I could help you
 give this year! 



The price list and clothes suppliers are coming shortly-
 Please stay tuned!!

 

~Thanks so very much for following 
our adventurous Journey with SMA~ 


I look forward to making your Christmas Season 
Personal and Customized!! 


~Cheers~

One BLESSED mommie 



www.OneBLESSEDmommie.etsy.com 










Wednesday, September 24, 2014

Dream Came True!

Okay- so last time we spoke, 
(over a moth ago... oops! Where did that time go?!?) 
Denalli was about to turn SEVEN and she and DallieJo were going to try out for the Faith Stock Show Princess Contest.

Well- to say the least- 
The entire experience was so neat and wonderful and 
fully emotional... 

You see- Denalli can ride a horse, but not without help. 

And generally in a princess competition, the princesses have to ride by themselves. 

BUT- 
something SUPER SPECIAL happened...
 the coordinator of the event let Denalli be a part of the experience, regardless of her physical limitations.


It was a Dream Come True.... 


And beyond that- 
it was a huge moral booster for Denalli. 


It showed her that that she can be a part of "normal" activities, regardless of her power-chair. 



So- without further delay- 
Here are some snapshots of DallieJo and Denalli Living LIFE! 




~The two princesses all dolled up~ 






~Just being sisters~






~If any of you personally know Denalli- this is the expression she uses when there is so much excitement built up inside of her, that she can hardly stand it. Basically- it equates to any other child doing an extreme happy dance... ~



~ I don't know about you, but I see an amazing young girl that is going to Change the world~ 





~All the cute little princess contestants~ 





~One Proud Daddy and His Beautiful Princesses~







~Mommie and Denalli before the horsemanship class~ 









~Daddy giving last minute advice to the princess~ 





~ This is DallieJo out in the arena. Her horse gave her a little bit of trouble, but she stuck with her and succeeded! ~ 






~DallieJo talking to the judges and answering their questions.... 

Okay- who am I kidding?!? This is DallieJo sitting in front of the Judges and smiling at them while they ask her questions. Talking to people is not her forte' right now... ~





~Denalli all excited to go ride through her horsemanship pattern~ 





~This is the DallieJo that keeps us laughing all day long~ 





~ DallieJo- you are an amazing little Cowgirl ~ 





~Our SUPER Amazing Little Princess~ 




At the end of the day- Denalli ended up winning the 
"Miss Congeniality" award. 

This was so very special- because they only give out one of these awards throughout the entire princess/queen group, 
and there were 13 girls that competed. 

"Miss Congeniality" was voted on by all the other girls, and Denalli seemed to win all their hearts... go figure! ;) 

She received a pink backpack and other little treasures that topped off the days' excitement. 

Denalli also won 2nd runner-up, which equates to 3rd place. YAY!!


DallieJo received a goodie bag full or treasures and a day packed full of learning adventures.

This mama couldn't be more proud... 


To the coordinator and judges of this event- 
a HUGE heartfelt thank you, happy tears and gratitude that I can't begin to express in words... 
You all were Amazing! 

I am so very grateful for the opportunity to have had both my beautiful daughters be a part of the evert and I look forward to many more queen competitions in the future!!

~*~*~*~

Now- I have some more BIG NEWS to share.... 




This Truck Pulled into our driveway and Delivered a package.... 

Any guesses on what it could be?!? 



Stay tuned for the BIG ANNOUNCEMENT thats going to make more Dreams Come True!! 

=) 


Hugs~

One BLESSED mommie







Thursday, August 7, 2014

~ A FANTABULOUS Event ~

Oh my- where do I begin...?!?

I guess I wanted you to know that 
August is SMA Awareness Month. 

This means- the SMA families and those around us are doing lots of things trying to get information out about SMA as far and wide as we can get it. 

In fact: 

I am taking questions right now. 

If you have ANYTHING you want to know about SMA, our lives with SMA, what we do to face each day 
and obstacle in our way-
PLEASE ASK AWAY! 

There is not a "wrong" question and no question "too personal". We are open to sharing our journey and our story, so others can better understand our lives and our little journey. 

I will take each of your questions and then openly answer them as best I can. 


I look forward to hearing what you are wondering about!

To give a kick start: I want to tell you about the 3 types of SMA. (this info is from Ella's Wall)


SMA Type 1 Symptoms- 
Type 1 children are diagnosed usually before 6months of age, more often before 3 months of are. Symptoms may even start in the womb. Many mother later recall the baby not moving as much as the last moth or so of pregnancy. They are not able to hold up their heads, roll over, crawl, sit up without support, or walk. All of their muscles are extremely weak, with the weakest muscles being the legs, upper arms, and neck. Their chest may appear concave or very skinny at the top, with a big belly. Bell-shaped. SMA affects all muscle systems as well including sucking, swallowing, digesting food and excretion. Constipation is a common problems as is being able to control excessive drooling (secretions) and getting proper nutrition and calories for proper weight gain. 

One of the biggest symptoms for SMA type 1 is a quivering tongue. Ella's tongue always does little quivers. It is the only disease that this is present. 


SMA Type 2 symptoms~ 
These children are usually able to be in a sitting position without support, but often can not get there by themselves. They can sometimes crawl with bracing and therapy and on occasion may stand with braces. They will usually never walk. (Denalli was able to take 7 independent steps at one time while Ryka can not stand or bear weight at all by her-self) Feeding and swallowing problems are not common in Type 2 children, though they are still possible. The lifespan of a Type 2 child varies so widely, there isn't one! They could pass away at an early at, or they could live well into adult hood. As with all forms of SMA, weakness increases over time. 


SMA Type 3 Symptoms~
 In the beginning theses children are able to stand and walk but usually have difficulty doing so. They typically have a normal lifespan, however as with all forms of SMA weakness gets progressively worse and they usually will be wheelchair bound. 



So- Now you know!! :) 



Now- please ask some more questions so I can tell you more!! :) 






Next- I REALLY wanted you to know-


TOMORROW IS DENALLI'S 7TH BIRTHDAY!!! 


I still can't believe it my-self... 

She has grown into such a little lady with such a BIG personality.


Along with it being her birthday- 
it will also be the day that one of Our dreams come true... 

Tomorrow will be the day Denalli competes in her first
 RODEO QUEEN competition!!!! 


She will be competing for the 
Faith Stock Show and Rodeo Princess title!!! 


Awesome, Right?!?! 


On the day she was born- I started dreaming of the day she would ride a horse around the Rodeo Arena and wave to the crowd... 


 Sad to say, but that dream was sort of muted-
 the day she was diagnosed with SMA... 


But, then- a couple of days ago- it was brought out of the dark and is now becoming a reality!! 


Since riding a horse for the title is a MAJOR deal- 
How is this made possible?!? 


The coordinator of the competition is going to allow me to sit behind Denalli- while she rides through the horsemanship competition. 


Denalli will be in control of our trusty ol' steed, and I will sit behind her to be her "seatbelt"... 



I AM ECSTATIC! 



And SO IS DENALLI!



Denalli will also be modeling an outfit and completing an interview with the Judges... 



Dallie Jo is also competing for the same title. She is equally as excited and ready to go do her horsemanship pattern and queen wave around the arena. 
oh- and she has her little modeling walk down pat. :) 



It is gonna be a FANTABULOUS day.... 



Then after all the emotions and happy tears have been cried- 
We will enjoy the rest of the day and take in the nightly rodeo, and top it off with a live band and country dancing....


We are so blessed to live where we do... 



I can't wait to share pictures and videos of tomorrows adventures.


There is also some more Fantabulous news
 that will be "rolling" in soon.... 



But- it's late and tomorrow is a BIG day...




~HUGS~ 
One BLESSED mommie