Thursday, July 11, 2013

~Twirling Fun~

 One evening, Mr. Cowboy informed me that, "the girls need more pajamas." This was not an unknown fact... I had it on my "to do" list, but just hadn't gotten to it yet. So, with his suggestion, I eagerly grabbed my needle and thread and disappeared into my sewing room. After a while, here is what came to be.... 


~The girls were pretty excited to have new matching dresses~

~Group hug showing off the length~ 

~They were a little plain on the bottom, so I added some white lace and a little lace flower~ 

~aww, sleepy time!~ 

~More smiles~ 

~Tiny Toes and Bows~

~What happens when you put a little girl in a new dress?~? Well, she has to twirl of course! Here is the first little princess practicing her ballet routine ~

~Concentrating and planning out the perfect twirl~ 

~Perfect form~ 

~twirling, twirling, twirling~ 

~Next up is my little pebbles~ 

~Swing to the right~

~And twirl to the left!~ 

~ Adding some speed ~

~This girl is a twirling machine~ 

~Step, two, three...~

~Ballerina  pose~

~The dress (and twirling session) was a success! ~

OKAY, so here is what I REALLY wanted to show you.... Like I stated previously; any little girl that tries on a new dress wants twirl.... right?!? Well what about my oldest daughter who is un-able to stand/walk?!? Of course she wants to twirl like a ballerina! After her sisters were done doing their twirling dances, she looked at me and said, "Mama, I really want to twirl too..." I looked down at her and a moment of aching pain shot through my heart. I thought, "oh how I hate SMA... how in the world are you going to twirl like your sisters, when you can't even stand?!?" But, with her determined little eyes staring at me, I picked up my camera and said, "Okay Denalli, show me your twirling... ". So, without further a-due, here is my determined little fighter, twirling in her new dress~ 

~Getting her pose ready~ 

~And TWIRLING!!! ~ 

~Twirling around.. ~ 

~And around...~ 

~And around...~ 

~Just like a ballerina princess!~ 

Yes, I did cry- and I choke up every time I see these pictures. I am so very thankful for a beautiful little girl that shows me what life is really about.. 

Oh, and yes, I could not take pictures of my 3 little girls twirling without my boy wanting his "twirls" caught on camera too! haha... 

~perfect form~

~Look at him go!~ 

~These are man twirls... (more like flying if you ask me...)~ 


Saturday, July 6, 2013

Home From Mayo!

 I want to sincerely thank all of you who have been praying for my health. There is "proof in the pudding"-  the Lord has defiantly been working in my life...

We ended up going to Rochester, MN, because we felt that the possible severity of my health problems needed to be addressed right away. The local doctors kept sending us "down the line", always being referred onto a different doctor or a different specialist. At Mayo clinic, we found right away that the tumors that I have developed throughout my body are non-cancerous. PRAISE THE LORD!! The tumors were the greatest concern and we are so thankful and relieved that they do not show signs of cancer. The doctor at Mayo did not give us a definite answer about the other symptoms I have. He really would not give us a straight answer at all. He suggested we wait 6 months, then repeat blood work to see where my levels are at. If anything dramatically changes before that, we are to return right away... Please continue to pray that in the coming months the unusual exhaustion, dizziness, racing heart, and list of other symptoms would subside. All in all, I fully trust that God is working and is fighting my battles! 

So, on a different note, I have a healthy little girl who just turned 6 months old. (seriously, she is way too cute.... I just have to tell you a little bit about her!)  I can't believe 6 months have flown by.... She has filled them with tons of laughs, smiles, lots of joy, and many sleepless nights. God continues to work in her life. She is still physically pre-symptomatic SMA. The only ways that constitute SMA in her body right now, are the lower nerve readings and the constipation that is setting in. :( But look at her... isn't she WONDERFUL! 

 I am holding tight to the promise of a better future for her. My mind goes crazy and tears build up when I start to think about the long road ahead of her.... I know I just have to take it one day at a time and truly cherish the moments. Speaking of... she learned how to sit up within the past 2 days. Since she is a very healthy little girl- weighing in at 21.5 lbs. on her 6 month birthday... Her bum is a little round to say the very least, and it took a little time to "flatten" it out! Ha! :) 

She has developed several loving nick names. Chubby monkey, my squishy (off of finding nemo), chubbers, cootie- (from her siblings- "Mama, she is such a coootie... :) ), and chunky munkin, are just a few of them. Do you have any suggestions for loving nick names?!? 

Once again, Thanks so much for your prayer power and support. The past few months have not been easy, but they have been bearable with the peace in knowing that God does have a superior plan! Until next time- 

Many Blessings to you and yours~ 

One BLESSED mommie